From everydayhealth.com
Here’s what you should know about optimizing your control of psoriatic arthritis, and recognizing when you may need to advocate for more effective treatment.
What Is ‘Optimal Control’ in Psoriatic Arthritis?
Usually, doctors aim to treat psoriatic arthritis using what’s known as a treat-to-target approach — meaning they set a specific goal that makes sense for a patient, then adjust treatment as needed to achieve that goal.
While many doctors use minimal disease activity as the main measure of psoriatic arthritis control, “Others may use informal targets and rely on a physical exam and patient reported satisfaction,” says Rebecca Gordon, MD, a rheumatologist at UCHealth Cherry Creek Medical Center in Denver. Tolerating medications well is another important measure that isn’t a component of minimal disease activity, Dr. Gordon says.
- Minimal or no joint swelling or pain
- Small area, or no area, of skin with active psoriasis
- Minimal or no pain in areas where tendons join bones (enthesitis)
- Minimal or no swollen “sausage fingers” or toes (dactylitis)
- Minimal or no systemic symptoms, like fatigue or brain fog
Above all, your psoriatic arthritis shouldn’t get in the way of daily activities, says Eric Ruderman, MD, a rheumatologist at Northwestern Medicine in Chicago. “I think function is a really important target,” he says. “We want to get the disease controlled enough that it doesn’t limit the things they do.”
Signs You’re Settling for ‘Good Enough’
Psoriatic arthritis symptoms that persist in a significant way may be a sign your disease isn’t adequately controlled.
The following “red flags” may indicate less-than-optimal disease control, according to Dr. Husni:
- Ongoing swollen joints
- Ongoing enthesitis or dactylitis
- Morning stiffness that doesn’t improve soon
- Recurrent disease flares that require steroid treatment
- Worsening skin or nail symptoms
- Pain that interferes with work, sleep, exercise, or family activities
But it’s important to distinguish symptoms of psoriatic arthritis from any other health conditions you may have. “Ongoing pain does not always mean that psoriatic arthritis is not under control,” says Gordon. “In cases where it is not certain what is causing ongoing pain, imaging with ultrasound or MRI can help evaluate ongoing inflammation or other causes of pain.”
You may also be settling for inadequate treatment if your overall disease control is good, but an aspect of your psoriatic arthritis that especially bothers you persists, says Dr. Ruderman. “If you go after a global outcome measure and yet the thing that bothers [the patient] isn’t truly better, then you haven’t achieved your target,” he says. “I look to them to say, what are the elements of the disease that bother you the most? Is it your joints, your skin disease, your Achilles tendinitis?”
The Risks of Settling
Settling for less-than-adequate treatment of your psoriatic arthritis doesn’t just mean a worse quality of life in the present. It could also endanger your health in the future.
Gordon says that suboptimal disease control is linked to both accelerated joint damage and a higher risk for cardiovascular disease. “Patients should be working closely with their primary care providers to ensure optimal control of things like lipids, blood pressure, and diabetes,” she says, particularly if you’ve had periods of ongoing psoriatic arthritis activity.
Ongoing symptoms that seem fairly tolerable can still mean trouble in the future. “If you settle, sometimes disease with low-grade symptoms can continue and lead to disability over time,” says Husni.
Ruderman notes that some therapies for psoriatic arthritis, particularly biologic drugs, may help prevent joint damage even if they don’t fully control your symptoms. “You risk the possibility that you might do less well on something that we switch you to,” he says. “So it becomes a bit of a judgment call.”
A key question, Ruderman says, is whether you’re fully living your life instead of being limited by your psoriatic arthritis. “If the answer is no, we can maybe get there,” he says. “And why shouldn’t we, when we have the medications and tools to do so.”
How to Advocate for Improved Treatment
If you feel that your psoriatic arthritis treatment leaves something to be desired, it’s important to let your doctor know about your concerns so they can take action. If your disease has improved but you have some ongoing symptoms or episodes of feeling worse, “There may still be some lingering disease activity, and more imaging or frequent exams could help,” says Husni.
Husni suggests keeping a diary with weekly entries listing any symptoms or concerns and sharing this with your doctor at your next appointment. “This will help the physician understand what is bothering you the most and better understand what is related to psoriatic arthritis and what may not be,” she says.
Since appointments with a rheumatologist can be difficult to schedule and may feel short or rushed, Gordon suggests asking your doctor about the best way to communicate between appointments to share your concerns as needed.
During appointments, “patients should not be afraid to ask directly, ‘Am I at my treatment target?'” says Gordon. “Patients should also express their priorities — i.e. reduced pain, minimizing side effects — to help tailor treatment selection.”
Don’t be afraid to let your doctor know if you’re not satisfied with your disease control, says Ruderman. “You have to say, ‘These are the elements of my disease that I’m not happy with. What are we going to do to fix that?’”
The Takeaway
- For most people with psoriatic arthritis, optimal control means achieving minimal disease activity (MDA), with few if any ongoing symptoms.
- Even relatively minor disease activity can worsen joint damage over time, and may increase the risk of developing cardiovascular disease.
- Let your doctor know if you have any symptoms that bother you, keeping track of how often they occur. Ask how your treatment can be changed to address your concerns.


