Thursday, 31 October 2024

USA: 5 Organisations That Can Help You Manage Psoriasis

From everydayhealth.com

These resources make it easier for people with psoriasis to navigate the road ahead

Psoriasis is more than skin deep. For the more than 8 million people in the United States who are living with this chronic skin condition, it can leave a lasting physical, emotional, and social impact.

Organizations that have expertise in psoriasis, as well as patient advocacy groups, can provide you with educational resources, offer practical tips for managing your daily tasks, and connect you with others who understand first-hand what you’re going through.

Whether you are newly diagnosed or have been managing the condition for years, check out these resources to help yourself navigate life with psoriasis.

National Psoriasis Foundation (NPF)

The NPF is a non-profit organization founded in 1967 that is now the lead patient advocacy group for people living with psoriasis and other forms of psoriatic disease, such as psoriatic arthritis. The organization is committed to finding a cure and improving the lives of people living with these conditions.

Along with providing educational information about diagnoses and treatment options, the NPF also offers free assistance for people with psoriasis, their families, and their caregivers through the Patient Navigation Center. You can call their center directly with any question at all — from how to find a specialist to how to handle insurance issues — or submit your question online to receive a response within three business days.

The NPF also hosts a One to One program, where they can connect you by phone, email, or text to another person with psoriasis who understands what you’re going through. If you’ve had psoriasis for a while, you can also volunteer to become a One to One mentor. 

One of the NPF’s major goals is to support research to find a cure for psoriasis — and in the meantime, optimize the health of everyone living with psoriatic disease. They host various community events to connect people with psoriasis locally (or virtually) while raising funds to support these initiatives.

You can also follow the NPF on: 

American Academy of Dermatology Association (AAD)

Founded in 1938, the AAD is the largest professional dermatology organization, representing over 20,500 experts worldwide. They’re committed to spreading awareness and finding treatments for psoriasis; promoting educational and research opportunities; and enhancing patient care for psoriasis and other dermatological conditions.

The AAD’s website offers information about psoriasis; tips for hair, skin, and nail care; dermatologist-approved insider secrets for managing the condition; and a searchable database to find a dermatologist near you who specializes in psoriasis. 

For more information, contact the AAD by calling (888) 462-DERM (3376). You can also follow the AAD on: 

Psoriasis Association

Founded in 1968, this United Kingdom–based charity and membership organization’s goal is to help improve the lives of people with psoriasis or other forms of psoriatic disease. Over the years, the Psoriasis Association has donated millions of pounds to fund psoriasis research that aims to understand more about the causes, nature, and care of psoriasis.

The Psoriasis Association hosts an annual Psoriasis Awareness Week, as well as other initiatives and fundraisers to spread knowledge about psoriasis to a wider audience. They also provide educational information directly on their website about psoriatic disease, including how it’s treated and how it can affect your day-to-day.

Notably, the Psoriasis Association invites members of the psoriasis community to share their stories about what life with the condition is really like. They also offer peer-to-peer support through their Facebook group and various forums, as well as an opportunity to connect with others, share experiences, and seek support.

You can reach their helpline by contacting the organization directly:

Inspire’s Psoriasis Community Forum

Inspire is an online community that connects people with psoriasis or psoriatic arthritis (and their loved ones) to healthcare professionals. Think of it as a place where you can share health information, seek advice, and find support.

To participate, visit their Psoriasis Community forum, an online group for people with psoriasis or psoriatic arthritis that has more than 300,000 members. You’ll need to create a free account to log in; afterward, you can read posts and comments and interact with other members.

PsoriaSis Collective

After experiencing a particularly bad psoriasis flare during the COVID-19 pandemic, Ayesha Patrick started searching for information and support from other people of colour. Frustrated with the lack of available resources, she founded the PsoriaSis Collective as a safe space to support women of colour who are living with psoriatic disease.

Patrick shares her personal experiences with the world through her blog and connects directly with others through her Facebook group. She also participates in NPF-hosted fundraising events in New York.

Resources We Trust


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